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UK: Theresa May personally promised my epileptic son cannabis oil - and he's still waiting 3 months later Dan Bloom The Mirror Tuesday 19 Jun 2018 The mum of an epileptic six-year-old boy has blasted Theresa May for promising to give him cannabis oil - but still not following through three months later. Hannah Deacon revealed the Prime Minister gave her the personal assurance for her boy Alfie Dingley during a face-to-face meeting in Downing Street. Yet Hannah has faced "hurdles after hurdles after hurdles", and still has no permit for him to be treated with cannabis oil legally in the UK. "She looked at me, she met my son and she told me that they would find a way," angry Hannah said today. "I believed her. "That was three months ago." Ms Deacon spoke out as 12-year-old Billy Caldwell was granted a limited licence for the drug after being taken to hospital with seizures and close to death. Ministers have admitted current processes need reform and they are setting up a new expert panel to advise on cases like Billy's and Alfie's. Alfie suffers from a rare form of epilepsy which means that he can suffer more than 100 seizures a month. Doctors warned he would suffer a heart attack or psychosis if they carried on treating him with intravenous steroids. So his mum spent £30,000 getting treatment for him with medical cannabis in the Netherlands - where it is legal. But the family were forced to return to the UK after they ran out of money. In March, Ms Deacon met Mrs May in Downing Street and she promised to help, but the case has still not been resolved. "I met the Prime Minister on March 20 in Number 10. I appealed to her directly," Ms Deacon told BBC Radio 4's Today programme. "She looked at me. She met my son and she told me that they would find a way in which our clinicians could be issued with a Schedule 1 licence to give my son the medicine that he had in Holland. I believed her. "She also answered questions at PMQs and she said to MPs that our application would be allowed on compassionate basis and it would be dealt with speedily. "That was three months ago. All that we have been put through is bureaucracy, hurdles - hurdles after hurdles after hurdles - changes in what they want, saying to us 'This isn't good enough but we can't tell you what we want because if we did it would be doing it for you' "This has never been done in this country. No physician in this country has applied for a Schedule 1 licence. We don't know how to do it we need you to tell us but they wouldn't. "We have done this wrangling for three months of how to do it. The application is now in. They need to give us a decision. "The Prime Minister said to me she would help us provide this medication for my son. That is what needs to happen." https://www.mirror.co.uk/news/politics/theresa-promised-epileptic-son-cannabis-12740455
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