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UK: Girl, 2, prescribed medical cannabis for severe epilepsy but father cannot obtain drug in the UK

Bonnie Christian

Evening Standard

Thursday 06 Dec 2018

A two-year-old girl, believed to be the first child in the UK to be prescribed medical cannabis, cannot receive treatment because no pharmacy has a licence to sell it, according to her father.

Jorja Emerson's family fought for weeks to secure the landmark prescription to treat her severe epilepsy.

However, after receiving it on Monday, they have now been told they face a further delay in getting treatment.

Jorja's father, Robin Emerson, 33, said she urgently needs treatment because she currently has a chest infection, which is “setting off her seizures.”

He added: “anything could happen.”

A Government spokesman pointed out that medical cannabis "can be imported using appropriately licensed pharmaceutical wholesalers".

However, Mr Emerson said this process could take "weeks or months".

"We are letting bureaucracy get in the way of saving children's lives.

"Jorja is entitled to her medication and it's legal. There should be no issue."

Responding to Jorja's case, Sir Mike Penning MP, who co-chairs the All-Party Parliamentary Group on Prescribed Use of Medical Cannabis, said: "Parents like Robin already have more than a head full, coping with the stresses and strains of caring for very sick children.

"The last thing they need is a long and tortuous process to actually get the medicine that's been prescribed.

"This assault course of bureaucracy needs sorting out once and for all.

"But in the meantime, if this prescription isn't sorted soon I'm minded to ask a small cross party group of MPs led by myself and my co-chair Tonia Antoniazzi to go and get it from Canada and give it to Robin for Jorja."

Mr Emerson said that for Jorja, the treatment is "the difference between her living and dying".

Jorja, who is from Dundonald in County Down, Northern Ireland, suffers up to 30 seizures each day.

Her father said he will not leave London until he has obtained the drug.

The Government spokesman said: "There are already a range of products that can be supplied and we are working closely with a range of other manufacturers to ensure a wider range is available for specialists to prescribe for their patients."

There are a small number of patients already receiving the treatment following lawful importation, he added, and no Home Office import licences have been refused from appropriately licensed pharmaceutical wholesalers in relation to medical cannabis.

He would not comment on the individual case.

https://www.standard.co.uk/news/uk/girl-2-prescribed-medical-cannabis-but-cannot-obtain-drug-in-the-uk-a4010546.html

 

 

 

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