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UK: Twin boys suffering from epilepsy denied cannabis drug on NHS

ITV

Monday 21 Jan 2019

Twin boys Levi and Lucas have been denied a Cannabis based medicine Epidoilex which could help with their uncontrollable seizures.

After a report from Calendar parents Paul and Michael Atwal-Brice were called to Sheffield Children Hospital.

But it wasn't the news they wanted to here. Instead of being offered the Cannabis drug they were given a medication that Levi had been on 10 years ago.

Levi was also offered VNS surgery but with only a 30% of working the family are apprehensive in going down that route.

Guidelines for Epidiolex states it should only be provided for a diagnosis of Dravet Syndrome or Lennox-Gastaut Syndrome and it's unclear if the twins have been diagnosed with either.

https://www.itv.com/news/calendar/2019-01-21/twin-boys-suffering-from-epilepsy-denied-cannabis-drug-on-nhs/

 

 

 

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